Objective: The aim of this study is to describe the sociodemographic and clinical profile of
patients with Duchenne Muscular Dystrophy (DMD) treated at the Child and Adolescent Health Care
Unit (UASCA) of the University Hospital Bettina Ferro de Souza (HUBFS) in Belém , Pará, Brazil.
Method: This is a quantitative-descriptive, retrospective study, where sociodemographic data such as
gender, education, race, current age and place of origin were collected, and clinical data such as
diagnosis, age during clinical diagnosis, place where it was diagnosed, age of first appointment at
HUBFS, first signs and symptoms, age at first signs and symptoms, family history, heart disease and
previous surgeries. Result: At the end of the research, 29 medical records were selected for analysis.
The profile of the patients identified that most of these were considered as brown, and that the average
age was 12 years, while the average age of the first signs and symptoms was 3 years, and the place where
most patients were was diagnosed at the University Hospital Bettina Ferro de Souza (HUBFS), and this
diagnosis occurred on average at 8 years of age. Conclusion: There was a long delay for the diagnosis
of DMD, this delay can lead the patient to lose their physical autonomy earlier and there is a worsening
in the prognosis. This delay in diagnosis can be explained by the lack of a reference center in the
Amazon.
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